Kristy and TJ Cook’s son Robbie, who is now 7 years old and has a rare type of epilepsy, was born with the condition, which has resulted in his having daily seizures, slowed down his cognitive skills, and prevented him from speaking.
He needs complete help whenever he moves about, whether while he is having a bath, sitting in the automobile, or going back and forth between the two.
However, this did not prevent them from bringing their kid on vacations to national parks and hiking trails with them despite the difficulties they faced.
When Robbie was a younger infant, Kristy would carry him about by securing him to her back using a backpack.
TJ is the one who performs the lugging now since he has become larger and heavier. Within the last 2 years, they had been to 27 national parks and 13 different states.
The couple also has two more children, Mason, who is 22 years old, and Nikki, who is 9 years old. In addition, a camper was granted to the family of five by the children’s charity known as the Make-A-Wish-Foundation.
This foundation is dedicated to helping make the desires of children who are suffering from life-threatening or chronic diseases come true. They will have an easier time moving about as a result.
Kristy feels an immense sense of gratitude for her husband for all that he does for their child.
“It is challenging to carry a youngster that weighs 60 pounds on your back for a period of two hours.
But the best part is seeing my spouse laugh when he does it. It’s that you never hear him moan that it’s difficult or that he’s exhausted. No second thoughts.”
The Cooks have developed a network of other parents who are going through circumstances like to their own with the intention of providing assistance to other parents of children who have unique need.
In addition to this, they have established a web-based community in which they share helpful information and words of support with other parents.